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GFCF--anyone else?

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  1. Kim
    Member

    Hi everyone,

    I am very new at this--at everything that is, forums, gluten, casein, etc.--my oldest daughter has been placed on the GFCF diet because of a suspected autism spectrum disorder and I am struggling to find foods she will eat! I love this site--it is a big help with those links right to the special ingredients--if only life was that simple :) I was wondering if anyone else is visiting this site for GFCF diets or if they have children going through this. My daughter is 2--I can't get her to eat ANYTHING! The only things she will eat are gluten-free, dairy-free, sugar-free chocolate bars and organic homemade french fries. Since I have heard potatoes can feed the bad bacteria inside their tummies, I have been trying to avoid french fry overloads--but its hard when that is all she will eat!! She is so thin!! Any tips?

    Posted 1 year ago #
  2. leila
    Member

    Hi,
    I'm a psychologist and have been on a GFCF diet for some time now myself! At the age of 2 some children's taste buds are very sensitive to certain vegetables so that might be one of the reasons why she avoids those kind of foods.

    The most important thing to remember in adopting a new diet is that it is a lifestyle change and should be taken one step at a time. Donna Williams has written a few books about her own experiences as a person with ASD, I worked with her a few years back and she said the salicylic acid exclusion diet (mentioned below) worked well for her. It might be useful to take a look at one of her books.

    This blog covers nutrient high foods, this particular post (below) focuses on the problems she's been having with her toddler and the steps she went to resolve them.
    http://www.thenourishinggourmet.com/2009/04/the-food-and-behavior-connection-with-children-with-a-personal-update.html

    Exclusion diets
    The gluten free/casein free diet has been found to be particularly useful with people with ASD. This diet is generally a selection of products which are:

    * gluten free, one of the proteins found in wheat, oats, rye and barley
    * casein free, a protein found in mammals milk
    * aspartame free, artificial sweetener
    * MSG free. Mono-sodium glutamate, a flavour enhancer

    You probably already know this, but I've included it just in case you didn't know about the last two.

    This site (below) offers advice for people new to the "allergy" diets, specifically bringing attention to the other names that bad ingredients would go under. As it focuses on allergies it makes no mention of behavioural symptoms.
    http://my.clevelandclinic.org/disorders/allergieshic_special_diets_for_food_allergies.aspx

    Some people with ASD cannot tolerate certain fruits, yeast, sugar, nitrates, high salicylic acid and phenols. The following list is from the cleveland clinic link (above), foods containing salicylic acid include:

    Fruits such as apples, avocados, blueberries, dates, kiwi fruit, peaches, raspberries, figs, grapes, plums, strawberries, cherries, grapefruit and prunes
    Vegetables such as alfalfa, cauliflower, mushrooms, radishes, broad beans, eggplant, spinach, zucchini, broccoli and peppers
    Herbs, spices and condiments such as dry spices and powders, tomato pastes and sauces, vinegar and soy sauce
    Beverages such as instant coffee, wine, orange juice, apple cider, regular and herbal tea, beer, rum and sherry
    Nuts such as pine nuts, peanuts, pistachios and almonds
    Some candies, such as peppermints, licorice and mint-flavored gum and breath mints

    It's a good idea to look on the site and familiarise yourself with the products (this list includes packaged foods, medicine, toiletries and cosmetics) that might contain the salicylate compound and ingredient names to look for.

    It sounds like a lot and in most cases only certain foods will worsen her ASD symptoms if the salicylate compound is an issue and if ASD is what you're dealing with. A colleague of mine suggests using GFCF organic babyfoods to wean children into this diet. Alternatively, it might be worth booking an appointment with a nutritionist to help you in structuring a diet for her?

    When you see GF, dairy free and sugar free chocolate do you mean dark chocolate with artificial sweeteners or agave nectar?

    I really hope this helps!
    All the best,
    Leila

    Posted 1 year ago #
  3. renatel
    Member

    Elana has a recipe on her site somewhere for squash fries which are supposed to be delicious.

    Posted 1 year ago #
  4. Samantha
    Member

    Hello Kim,
    I have a son with Autism and I know how hard it can be. He will eat his veggies from organic baby food jars. I also try to sneak them in other foods such as the pumpkin muffins (just search squash on this site). I also have a few websites with some good GFCF recipes: http://www.livingwithout.com
    http://www.eatingwithfoodallergies.com
    http://www.enjoylife.com
    http://www.thecravingsplace.com (it has the best pancake mix we have found)
    http://www.elanaspantry.com (is the site we use the most)
    Good Luck,
    Samantha

    Posted 1 year ago #
  5. Kim
    Member

    Wow! You all gave me such helpful information! Thank you so much. The websites were super helpful.

    Leila, in response to your last question, my daughter can have organic dark chocolate, but I have to watch the labels because it has to be pure dark chocolate. I found these chocolate bars and chocolate chips made by Enjoy Life brand at a natural foods store in my area (this is a great brand for us--it was the first one I found!-Samantha, I agree that this is a great site) and these chocolates are 100% safe for her. She loves them. My new favorite thing now is making chocolate chip cookies for her.

    I have found a clinic in St. Cloud, MN called the Williams IntegraCare Clinic, my daughter sees a doctor there who is an Autism specialist and the whole clinic focuses on natural healing. They are so wonderful. They have a website where you can shop for things like probiotics and other herbal healers. (http://icareclinics.com/) I suggest you check it out.

    Anyway, it's been tough, and I feel for anyone who is going through this. I just can't seem to wrap my head around how this happened--I never even knew what Autism was until my daughter began acting oddly and someone pointed it out to me. I also have a 5 month old daughter and I have taken every precaution with her--I get so scared that she will have problems too. She eats only organic rice cereals and baby foods and i purchased a baby food maker from Williams-Sonoma so I can make her foods when possible. I want to buy a juicer next so I can make her some juices. She is very different from my first daughter. She is healthy and I think that is why--she doesn't know pain like her big sister does. My oldest has leaky-gut syndrome, which is an abundance of yeast and other crud in her digestive system that causes cramping and other problems.

    I also have her working with a speech therapist, Teri Peterson. She is so fantastic and very passionate about healing children like my daughter. She wrote a book for children that teaches them how to imitate the noises around you and it also helps the parents to interact with the child. My daughter likes this book, but she's not quite ready to make all of these sounds yet--she just likes it when I do it. But, thanks to Teri, she is super close! I can't wait for her to talk!

    Well, you have all been so helpful, and I love this site as well--I have never been on a recipe site that has links right to the ingredients--that was the best part for me! I wish you all the best and I encourage anyone who has more information on Autism, GFCF diets, or just stories to tell to do so because it sounds like there are others who need this information as well, and I love to read about it--it kind of gives me some hope that things will work themselves out eventually. Thanks again.

    Kim

    Posted 1 year ago #
  6. elana
    Key Master

    Kim,

    Your daughter is so lucky to have such a caring, thoughtful and resourceful mother. What a great job you are doing in such a challenging situation.

    Elana

    Posted 1 year ago #

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