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A Pill for Celiac?

No. There is no pill for celiac disease. Could this be what makes it one of the most misdiagnosed diseases in our country?

If doctors and drug companies made money from gluten free cookies, perhaps we’d have more thorough screening. However, since there is no profit-making pharmaceutical remedy for this disease, it seems that much of the medical establishment has been remiss in treating people suffering from this fairly common malady –some studies show that 1% of the US population has celiac disease.

In today’s Los Angeles Times, Heather Abel discusses the angst-filled journey to discovering she had celiac. She also touches upon the romance between docs and big pharma and how this unholy alliance makes celiac such a “challenging” disease to diagnose.


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5 comments for the post “A Pill for Celiac?

  1. angie romanda said:
    angie romanda


    Please can some one help ?can celiac’s disease affect a bladder. For weeks now I have been suffering so bad I can’t seem to keep any fluids in my body all night I go .I am so tired and the doctor’s don’t help plus I have pain all the time in bladder area.


    July 10th, 2008 12:21 pm
  2. elana said:
    elana


    Dear Angie-

    This is definitely far beyond my area of expertise. Maybe you could put this up on the forum and someone might be able to give you some advice. If it was me I would find another doctor.

    I am so sorry that you are in pain.

    Elana


    July 11th, 2008 9:17 pm
  3. paula said:
    paula


    Is there an organization for young adults (college age) with celiac disease? I am hoping that there is something in Boulder - maybe even an organization on campus - thanks


    September 11th, 2008 7:24 pm
  4. candace said:
    candace


    I highly agree with this statement. For years I had suffered from fatigue and other problems. I felt as if I had no energy to get out of the bed. Every day at lunch time I HAD to sleep. If I did not I could not make it through the rest of the day. I was so exhausted that it hurt. My thyroid felt as if it was swollen. Doctors wanted to put me on antidepressants but I knew that this was not the problem. I went from doctor to doctor. they all ran blood work. Blood work always came back negative, including my thyroid test results. I decided to visit a homeopathic doctor, a kinesiolgist. She is the one who finally gave me answers. I am a celiac. I also suffer from thyroid disease and diabetes. I learned that food can be used as a remedy and a cure for lots of issues. Instead of putting a bandaid on the symtoms (while the problem still remains), why not work hard to get rid the problem. I have never felt better. It was hard at first. At my wedding I did not eat my wedding cake. However, I recently began to embrass my condition and view this as a chance to be creative.


    September 12th, 2008 4:46 pm
  5. elana said:
    elana


    Paula -You can try Boulder County Celiacs, I’ve heard good things about that group. Also, I will be speaking at the Pharmaca on Pearl Street about celiac disease on Sept 17. Given that I am probably twice your age, I’m not tuned into any organizations that are for younger folks like yourself here in Boulder. Perhaps a google search might lead you in the direction you are looking to go. Please stop back here and let us know what you find.

    Candace -I so agree with you, the healing process really is a journey and as you mention, for some people an opportunity to be creative.


    September 15th, 2008 11:10 am

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